Monday, February 23, 2009

Moments in Sarcoma

The Team Sarcoma Initiative (http://www.team-sarcoma.net/) has recently put out a request for Sarcoma patients and their families to write "Moments in Sarcoma".

This is a new project that will publish moments from the lives of patients and their families, doctors, researchers, and friends. Submissions are invited during the month of February. Then one submission will be published daily on the Team Sarcoma Website starting in May or June, continuing through the International Sarcoma Awareness Week in July and ending when all chosen moments have been published.

As a part of this very special project, one patient or survivor who submits a Moment by March 1 will be awarded a sponsorship of at least $2,000 (there may also be the possibility of some travel assistance) to participate in the 2009 "Core" Team Sarcoma Bike Tour during July 18-25, 2009.

For more details, see http://www.team-sarcoma.net/moments.html. All submissions must be 300 words or less.

Weighing in at 297 words, here is my submission:


“One Day at a Time”

So I’ve been battling Myxoid Liposarcoma now since July, 2008. I probably had this condition a year prior but just never knew it. Life was good and everything was easy. Then came the rather shocking diagnosis and even scarier “treatment” plan. At the time I wondered, “Why did this happen to me? Am I going to survive this ordeal?”

I’ve since endured 6 five-day cycles of intensive chemotherapy (over 4 months), numerous emergency trips to the hospital, 25 rounds of radiation (over 5 weeks), and surgery is only days away. I’ll be honest: the chemo sucked . . . and the smelly hospital food was even worse! My strong recommendation is to order takeout from your favorite restaurants instead. Whatever sounds appealing is what you should eat.

In contrast, the radiation treatment was a cakewalk. Sure, I now have funny tan lines on my left thigh and a little “sunburn”, but who cares! Life is good again, my appetite is back, and I’m even working fulltime (which I find quite therapeutic). It turns out that I work with some pretty darn funny guys . . . and it does feel good to laugh again.

If my sarcoma journey has taught me anything, I’ve learned to cherish the good times, enjoy my family and friends, have a few laughs, and even appreciate a fine meal. I refuse to dwell on the negative or live in fear. Yes, I concede that I am not in control of my destiny, but I am steadfast in my resolve to enjoy life and be thankful for all of the “easy times” that come my way (like now). I no longer grapple with questions that cannot be answered, but instead take things one day at a time.

http://dnovak-liposarcoma.blogspot.com

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