My older boy Bryce (9 1/2) called me last night and offered up these rather profound words of wisdom just hours before the chemo started:
I’ve been brave for you many times dad, now it’s your time to be brave for me.
He is a very sweet boy with a kind and caring heart (except possibly if the subject matter is his younger brother). But seriously, he’s really torn up about this thing and just wants me to be OK.
Well, I survived my first night with chemo . . . and now am ready for breakfast. (I’m especially happy about latter part of that statement. I guess the anti-nausea drugs are doing their job!) Hang on – ask and you shall receive: breakfast has just arrived. Mmmmm . . . just what I ordered: scrambled eggs, bacon, grits, biscuit, tea, and juice! I’m eating it now and it tastes just fine.
Nurse Ganette came by early this morning with a portable Electrocardiogram unit. Think of this as ultrasound for the heart. Dr. D’Amato ordered this test yesterday due to my low ejection fraction measurement (0.45). If this machine measures me at 0.55 or greater (making the average 0.50 or greater), I will be put on Doxorubicin (a.k.a. Adriamycin). Otherwise, they may continue looking further at my heart to get the answers they are looking for. I expect results for the Electrocardiogram later today and will post an update when I find out.
Chemo therapy update
As to my chemo therapy, I apparently misspoke earlier about dosages and timeframes. Last night I received Ifosfamide at a rate of 595 mL / hour for 2 hours (the extra dose Dr. D’Amato promised since I’m not taking Adriamycin). Yes, that’s like an entire bag in 2 hours. That was followed by another bag of Ifosfamide flowing at a rate of 59 mL/hour for the next 24 hours. That means I’ll be getting that 2nd bag replaced just after midnight tonight. And depending upon the results of my Electrocardiogram, I’ll be either starting Doxorubicin (a.k.a. Adriamycin) or getting yet another extra dose of Ifosfamide.
How you doing?
So how do I feel? Not too bad. Different, though for sure. I feel light-headed, tired, and have a slight ringing in my left ear (some of which at least could be due to the very poor night of sleep I got rather than the chemo). The biggest thing though is I’m not noticing any nausea, which was my biggest fear. And anybody who knows me knows that I do, in fact, enjoy a good meal. :) So I hope the anti-nausea drugs keep doing their thing!